ASSIST Research and Publications

ASSIST Publications

  • Burke, M. M., Best, M., Cheung, W., DaWalt, L., & Taylor, J. L. (in press). Exploring the involvement of autistic youth in decision-making about services. Intellectual and Developmental Disabilities.  
  • Li, C., Cheung, W., Burke, M. M., DaWalt, L., & Taylor, J. L. (2024). Examining the associations between knowledge, empowerment, and advocacy among parents of transition-aged youth with autism. Autism. https://doi.org/10.1177/13623613231221126 
  • Burke, M. M. Cheun, W. C., Best, M., DaWalt, L. S., & Taylor, J. L. (2024). Measuring what matters: Considerations for the measurement of adult services for individuals with autism. Journal of Developmental and Physical Disabilities, 36, 423 – 439. https://doi.org/10.1007/s10882-023-09916-6 
  • Taylor, J.L., DaWalt, L.S., Burke, M.M., Slaughter, J.C. & Xu, M. (2023). Improving parents’ ability to advocate for services for youth with autism: A randomized clinical trial. Autism Research, 16(10), 1976-1988. https://doi.org/10.1002/aur.3001 
  • Taylor, J.L., Pezzimenti, F., Burke, M.M., DaWalt, L.S., Lee, C.E., & Rabideau, C. (2022). Development, feasibility, and acceptability of a nationally relevant parent training to improve service access during the transition to adulthood for youth with ASD. Journal of Autism and Developmental Disorders, 52, 2388-2399. https://doi.org/10.1007/s10803-021-05128-z 
  • Lee, C.E., Shogren, K., Segal, J., Pezzimenti, F., Aleman-Tovar, J., & Taylor, J.L. (2022). Goal Attainment Scaling – Community-Based: A method to incorporate personalized outcomes into intervention research with youth and adults on the autism spectrum. Autism, 26(1), 178-187. https://doi.org/10.1177/13623613211024492 
  • Lee, C.E., Burke, M.M., DaWalt, L.S., Li, C., & Taylor, J.L (2022). The role of parental advocacy in addressing service disparities for transition-aged youth on the autism spectrum. Autism, 26(4), 1001-1006. https://doi.org/10.1177/13623613211057660 
  • Burke, M.M., Cheung, W., Li, C., DaWalt, L.S., Segal, J., & Taylor, J.L. (2022). Parental Perceptions of Service Access for Transition-aged Youth with Autism during COVID-19. Intellectual and Developmental Disabilities, 60(5), 369-381. https://doi.org/10.1352/1934-9556-60.5.369 
  • Shogren, K. A., Dean, E. E., Burke, K. M., Raley, S. K., & Taylor, J. L. (2021). Goal Attainment Scaling: A framework for research and practice in the intellectual and developmental disabilities field. Intellectual and Developmental Disabilities, 59(1), 7-21. https://doi.org/10.1352/1934-9556-59.1.7  

 

The ASSIST program was based on the Volunteer Advocacy Project- Transition (VAP-T). Below you can find published findings from the VAP-T pilot program. 

  • Burke, M. M., Waitz-Kudla, S. N., Rabideau, C., Taylor, J. L., & Hodapp, R. M. (2019). Pulling back the curtain: Issues in conducting an intervention study with transition-aged youth with autism spectrum disorder and their families. Autism, 23(2), 514–523. https://doi.org/10.1177/1362361317753016 
  • Taylor, J. L., Hodapp, R. M., Burke, M. M., Waitz-Kudla, S. N., & Rabideau, C. (2017). Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial. Journal of Autism and Developmental Disorders, 47(3), 846–857. https://doi.org/10.1007/s10803-016-2994-z